Top Non-Profits in the US Focusing on Long Covid Care

Jun 12, 2025By Dan the messenger 2021
Dan the messenger 2021

Understanding Long Covid

The Covid-19 pandemic has left millions struggling with lingering symptoms, commonly referred to as Long Covid. This condition can affect anyone who has been infected with the virus, regardless of the severity of their initial illness. Symptoms can be debilitating and vary widely, ranging from fatigue and brain fog to respiratory issues and heart problems. As awareness grows, several non-profit organizations in the United States have stepped up to provide crucial support and care for those affected.

long covid support

Essential Non-Profits Supporting Long Covid Care

Non-profit organizations play a vital role in offering resources, advocacy, and care for individuals dealing with Long Covid. Here’s a look at some of the top non-profits making a significant impact in this field:

Body Politic

Body Politic is a patient-led organization that has become a lifeline for Long Covid patients worldwide. Founded in the early months of the pandemic, it offers peer support, advocacy, and education. The group's online support group connects thousands of patients, providing a space for shared experiences and community-driven insights.

patient support group

Survivor Corps

Survivor Corps is dedicated to mobilizing Covid-19 survivors to support one another and to advance research and understanding of Long Covid. They offer a platform for survivors to share their stories, participate in research studies, and find critical resources for managing ongoing symptoms.

Research and Advocacy Initiatives

These non-profits not only provide direct support but also engage in research and advocacy to improve understanding and treatment of Long Covid. Their work is instrumental in shaping policies and driving the research needed to find effective treatments.

Pinterest Health Foundation

The Pinterest Health Foundation is involved in funding research specifically targeting the long-term effects of Covid-19. By supporting scientific studies, they aim to accelerate the discovery of treatments that can alleviate the burdens of Long Covid on individuals and healthcare systems.

research development

Covid-19 Longhauler Advocacy Project

The Covid-19 Longhauler Advocacy Project focuses on raising awareness about the challenges faced by Long Covid patients. They advocate for patient rights, improved healthcare policies, and increased funding for research. Their efforts have helped bring much-needed attention to the plight of Long Covid sufferers.

The Road Ahead

The work of these non-profits is crucial as the world continues to grapple with the long-term impacts of Covid-19. Their dedication to providing support, advancing research, and advocating for patients' rights ensures that those affected by Long Covid are not forgotten. As we move forward, ongoing support and collaboration will be essential in addressing this complex health challenge.

If you or someone you know is struggling with Long Covid, reaching out to these organizations can provide much-needed guidance and assistance. Together, we can work towards a future where all individuals have access to the care they need.